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Barbara Koenig
Books

Anthropology of Bioethics

Barbara Koenig, Marshall PA, Stephen Garrard Post
New York:Macmillan in "Encyclopedia of Bioethics", 3rd edition , 2004

The third edition has 120 new articles, among them Artificial nutrition and hydration, Bioterrorism, Cloning, Cybernetics, Dementia, Managed care, and Nanotechnology. Some 200 articles have been extensively revised, and 100 additional articles have new bibliographies. The alphabetical entries address a wide range of topics that raise difficult and important questions. Abortion, genetic screening, female genital mutilation, the right to die, health issues of immigration, and corporate responsibility are but a few. The contributors discuss the issues from many points of view.

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Journal Articles

Genetic Research and Health Disparities

P Sankar, M Cho, C Condit, L Hunt, Barbara Koenig, P Marshall, SJ Lee, P Spicer
Journal of the American Medical Association , 2004

Alleviating health disparities in the United States is a goal with broad support. Medical research undertaken to achieve this goal typically adopts the well-established perspective that racial discrimination and poverty are the major contributors to unequal health status. However, the suggestion is increasingly made that genetic research also has a significant role to play in alleviating this problem, which likely overstates the importance of genetics as a factor in health disparities.

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Journal Articles

Self-referred whole-body CT imaging: current implications for health care consumers

Illes J, Fan E, Barbara Koenig, Raffin TA, Kann D
Radiology , 2003

PURPOSE: To conduct an empirical analysis of self-referred whole-body computed tomography (CT) and develop a profile of the geographic and demographic distribution of centers, types of services and modalities, costs, and procedures for reporting results.

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Journal Articles

Qualitative methods in end-of-life research: recommendations to enhance the protection of human subjects

Barbara Koenig, Back AL, Crawley LM
Journal of Pain and Symptom Management , 2003

Qualitative research has the potential to contribute important new knowledge to care near the end of life, but research is often hampered by questions about how best to protect dying patients and their family members who serve as research subjects. Due to lack of familiarity with the techniques of ethnographic or observational research, as well as concerns about the vulnerability of the dying, members of Institutional Review Boards (IRBs) are often unable to evaluate the benefits and potential harms of studies.

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Journal Articles

Dead Donors and the Shortage of Human Organs: Are We Missing the Point?

Barbara Koenig
American Journal of Bioethics , 2003
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Journal Articles

Choice in End-of-Life Decision Making: Researching a Fact or a Fiction?

T Drought, Barbara Koenig
The Gerontologist , 2002

The contribution of bioethics to clinical care at the end of life (EOL) deserves critical scrutiny. We argue that researchers have rarely questioned the normative power of autonomy-based bioethics practices. Research on the ethical dimensions of EOL decision making has focused on an idealized discourse of patient "choice" that requires patients to embrace their dying to receive excellent palliative care.

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Journal Articles

Strategies for Culturally Effective End-of-Life Care

LM Crawley, PA Marshall, B Lo, Barbara Koenig
Annals of Internal Medicine , 2002
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Journal Articles

Why Not Grant Primacy to the Family?

Barbara Koenig
American Journal of Bioethics , 2001
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Journal Articles

Meanings of "Race" in the New Genomics: Implications for Health Disparities Research, The

SSJ Lee, J Mountain, Barbara Koenig
Yale Journal of Health Policy, Law, and Ethics , 2001
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Journal Articles

Ethical Decision Making and Patient Autonomy: A Comparison of Physicians and Patients in Japan and the United States

GW Ruhnke, SR Wilson, T Akamatsu, T Kinoue, Y Takashima, Mary Kane Goldstein, Barbara Koenig, JC Hornberger, Thomas A Raffin
Chest , 2000
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Working Papers

Beyond the Beginning: Bioethics, Health Policy, and the Human Genome Proj

Barbara Koenig
Conference proceedings, Empirical Bioethics in Cultural Contexts: Genetic Confidentiality, Ownership, and Public Participation , 2000
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Journal Articles

Genetic Testing and Alzheimer Disease: Recommendations of the Stanford Program in Genomics, Ethics, and Society

LM McConnell, Barbara Koenig, Henry T Greely, Thomas A Raffin, Members of the Alzheimer Disease Working Group of the Stanford Program in Genomics, Ethics, and Society
Genetic Testing , 1999
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Journal Articles

Genetic Testing and Alzheimer Disease: Has the Time Come?

LM McConnell, Barbara Koenig, Henry T. Greely, Thomas A Raffin, Alzheimer Disease Working Group of the Stanford Program in Genomics, Ethics, and Society
Nature Medicine , 1998
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Journal Articles

Genetic Testing for BRCA1 and BRCA2: Recommendations of the Stanford Program in Genomics, Ethics, and Society

Barbara Koenig, Henry T Greely, LM McConnell, HL Silverberg, Thomas A Raffin, members of the Breast Cancer Working Group of the Stanford Program in Genomics, Ethics, and Society
Journal of Women's Health , 1998
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